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Hearing lived experience voices on mental health and MS
8 October 2026
This World Mental Health Day 2026 (10 October), members of our Lived Experience Expert Panel (LEEP) share their experiences of managing mental health while living with MS, including seeking professional support, staying active, connecting with others and adapting to changing circumstances.
LEEP member, Julie shares her experience of MS diagnosis and how she's learned to manage her health over the years.
"Having MS means I am constantly “assessing” my body and listening to how I feel. I try not to do too much and take rest breaks as needed."
More than 3 million people are now living with MS worldwide
29 September 2026
Latest estimates show that more than 3 million people are living with MS worldwide. The rise is likely influenced by earlier diagnosis, improved care and stronger data collection, highlighting the growing global impact of MS and the need for action.
CEO Rohan Greenland discusses encouraging early results from the OCTOPUS/PLATYPUS trials, the Global MS Prevention Initiative showcased at the UN General Assembly, and the need for an Australian action plan for neurological conditions.
Early results show world-first adaptive trial in action for progressive MS
17 September 2026
A potential treatment for progressive multiple sclerosis (MS) will continue in a world-first multi-arm, multi-stage adaptive trial after showing encouraging early signs, with recruitment set to expand across Australia.
Alpha lipoic acid shows promise in Stage 1 of Octopus trial in progressive MS
17 September 2026
Results from Stage 1 of the Octopus trial find one of the trial treatments, alpha lipoic acid, shows promise in progressive MS and will continue into trial Stage 2.
Women and MS: one of the disease’s biggest mysteries
9 September 2026
Why does MS affect women more often than men? How does female biology impact MS activity? Discover what recent research is revealing about risk, hormones, immunity and EBV.
From our CEO: MS medication ‘rapid review’: Make your voice heard!
27 August 2026
Ahead of an upcoming PBAC stakeholder meeting on MS medicines, CEO Rohan Greenland outlines MS Australia’s key messages, including the importance of treatment choice and continued PBS access.
Have Your Say: PBAC review of MS treatments open for public consultation
27 August 2026
A public consultation is now open as part of a rapid review of PBS-listed medicines for relapsing-remitting MS. The MS community has an important opportunity to share their experiences and help ensure the lived experience of Australians with MS remains central to future PBS decisions.
Highlights from the 2026 MS Nurses Australasia Conference
27 August 2026
MS Nurses Australasia and their invited presenters shared specialist expertise and insights on MS care at their 27th Annual Conference in August 2026 in Sydney.
MS Australia LEEP members share perspectives on family screening for MS in international journal
26 August 2026
Through the lens of living with MS or caring for someone with MS, MS Australia’s lived experience expert panellists Rachel Fallis and Rebecca Small contemplate a future where family screening for MS was available.
Carol Cooke AM PLY shares her MS diagnosis story and how she's grown more comfortable with speaking up for herself in medical settings in the years since her diagnosis.
