Next 24 article - Top five FAQs at MSRA Brain Bank

Top five FAQs at the MSRA Brain Bank
 

Much of the MS research in Australia depends on the use of human tissue, donated by PwMS committed to helping others even after their death. Choosing to register as a brain donor is a wonderful legacy, yet it is not a decision to take lightly. It is essential to discuss the registration and donation process with your family members to ensure you have their full support and understanding.

These are the most commonly asked questions by those considering to register as a brain donor:

I’m already an organ donor. Do I need to register again as a brain donor?
Yes. You are not automatically a brain donor if you are a registered organ donor. Brain donation for research requires separate consent.
You can register as both an organ donor and a brain donor. To become a brain donor for MS research, please register with the MSRA Brain Bank and you will be sent further information and a state-specific consent form to complete.

Does it cost me anything to donate tissue?
No. The MSRA Brain Bank assumes all financial responsibilities for tissue collection, including transportation fees and the cost of neuropathological examination.

Do I need to write in my will that I am a brain donor?
No, you do not need to mention that you are a brain donor in your will. The brain donor consent form is sufficient for brain donation. The most important thing to ensure brain donation is that your family is aware and supportive of your wish, and that they understand the MSRA Brain Bank should be notified of a donor’s death as soon as possible.

What if I change my mind after registering as a brain donor?
You may withdraw your consent to donate your brain at any time by returning the Withdrawal of Consent Form (in your brain donor Information and Consent Pack). Furthermore, we will always respect your family’s wishes if they refuse or withdraw consent for brain donation at the time of death, regardless of your own pre-consent.

Will brain donation affect my funeral arrangements?
No, brain donation is organised and performed as rapidly as possible after death and would not delay or interfere with the normal course of events associated with a funeral, cremation or burial. The donation procedure does not affect the ability to have a viewing or open casket. We are always glad to answer any questions or discuss any concerns so that you can make a well-informed decision.

Please phone 1300 672 265, email msrabrainbank@med.usyd.edu.au or visit our new website: www.msbrainbank.org.au 

To view the other articles in Next 24, please click on the link below

• Multiple genes for multiple sclerosis
• MS research in the 'city of dreaming spires'
• F5m+ is a new beginning
• Wilder about fundraising
• F5m+ ensuring the best research projects will be funded
• Top 5 FAQs at the MSRA Brain Bank (article above)
• Find an MS trial on our improved website
• Broken Hill Family Fun Day

To download a copy of the Next 24 newsletter please click here